Funny how people say to me that I am 'handling' it so well. Handling it? Yes, I am handling life. Why, what is not handling it?
I'm a wreck today. Life is getting to me. Stress of being a single mom and being alone. I understand that I am not actually alone. I do, in fact, have 2 kids. And I have the help of my parents who do so much for me with my boys. But in reality, I am alone.
I am having a rough time with my boys right now. I know that at every age and stage in life, I will struggle. But Lucas' needs are getting harder and harder. He can't walk, talk or communicate. He throws, hits and pulls hair. He's a happy boy, most of the time and everyone loves him, but there are just times where he is so difficult. It is really getting hard to go places with him, something that I am struggling with on a personal level as well.
I've always been a go-go-go kind of girl. Nothing every really stopped me. I've always traveled with my kids and did whatever I wanted with them. But now, there is a real halt on that. I'm not sure if its a selfish thing on my part and I just need to deal with it; Or if its something that will pass and I will figure out a way to adjust to it. But taking Lucas everywhere is getting to be nearly impossible.
Another part of my emotion is my boyfriend. He is an amazing guy. Period. We are all so happy when we are with him. And He thinks my kids are great. But he doesn't have kids and hasn't really been around kids much at all. So enter.... the 3 of US. First there is me. 31 year old, emotional, college student, single mom, living at home. 5 year old, active, mouthy, CRAZY kid. 2 1/2 year old physically and mentally disabled baby. I know he wants to be with us. But man, I can not imagine being in his shoes. We must be a sight. How he is still around is beyond me. I worry that we are going to just be too much and scare him away. (Even though, deep down I know the truth)
I just don't know what to do. This life I was given, and these choices that I made, sure have lead up to a crazy time. I worry that I won't be able to 'handle it'. I worry that I will be alone. I worry that I won't be able to get a grasp on this parenting thing and fail.
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Hi I actually found you on the CDO website and I have a son who is 4 with a ring13 chromosome disorder. I dont know if you have a facebook but if so I would love to invite you to a page that I run for all family with children that have any type of chromosome 13 disorder. You will be able to communicate with many and we are all great friends (long distance of course) the group is called Chromosome 13 Abnormalities.
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